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Useful organisations

This section of DLF Data contains details of numerous voluntary organisations, Government agencies, support groups and other contacts that may be useful to older and disabled people and their carers. If you find any information that is incorrect please email Data Services to let us know which 'Contact' is incorrect and what information needs changing. If you would like to be added to the database please complete these questions.

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Radios Rape Rare Disorders Raynaud's Disease/Phenomenon Reflexology Rehabilitation Relationships Religious Organisations Repairs Repetitive Strain Research Projects Residential Care Respiratory Disorders Respite Care Retinitis Pigmentosa Retirement Rett Syndrome Rheumatic Disease/Arthritis Rights Rubella/German Measles

Research Projects

Funds a research programme into treatment and prevention of breast cancer, focusing particularly on metastases and survival after breast cancer. A team of researchers, funded by ABC, is based at University College Hospitals with ABC units around the UK. The ABC Research Team aims to find a vaccine against breast cancer, looking at how the cancer cell, patients' natural resistence, and their environment interact.

Address:

  • Leathem House
  • 13 Napier Court
  • Abingdon
  • OX14 3YT

Age UK has a vision of a world in which older people flourish. We aim to improve later life for everyone through our information and advice, campaigns, products, training and research. Provide free hearing tests and assessments.

Address:

  • Tavis House
  • 1-6 Tavistock Square
  • London
  • WC1H 9NA

Provide comprehensive information to prevent people from becoming infected with HIV. Aims to improve the quality of life for those already infected, and works with others to develop a cure. Funds research into HIV and Aids for improved treatments and understanding of HIV.

Address:

  • First Floor South East Sussex
  • 6/7 Lovers Walk
  • Horsham
  • BN1 6AH

Seeks to establish the first multi-disciplinary research centre towards treating or curing the condition.

Address:

  • 3 Riverside
  • Granta Park
  • Cambridge
  • CB21 6AD

Breast Cancer Campaign aims to beat breast cancer by funding innovative world-class research to understand how breast cancer develops, leading to improved diagnosis, treatment, prevention and cure.

Address:

  • Clifton Centre
  • 110 Clifton Street
  • London
  • EC2A 4HT

Aims to fight breast cancer through research and awareness and has established the UK's first dedicated breast cancer research centre, in partnership with the Institute of Cancer Research. To promote breast cancer education and awareness among the public, policy makers, health professionals and the media.

Address:

  • 5th Floor Ibex House
  • 42 - 47 Minories
  • London
  • EC3N 1DY

Carries out research into the causes, prevention, treatment and cure of cancer.

Address:

  • Cancer Research Angel Building
  • 407 St John Street
  • London
  • EC1V 4AD

Aims to attack and defeat the disease of cancer in all its forms, and promote its cure by research into its causes, distribution, symptoms, pathology and treatment.

Address:

  • Cancer Research UK Angel Building
  • 407 St John Street
  • London
  • EC1V 4AD

Runs MA in Disability Studies and has a thriving community of postgraduate students and welcomes those who would like to submit a PHD proposal in a disability related subject.

Address:

  • School of Sociology and Social Policy
  • University of Leeds
  • Leeds
  • LS2 9JT

Offers and provides support to individuals and families concerned with all forms of Creutzfeldt-Jacob Disease (CJD). Provides a national helpline with information and advice, emotional support for carers and to link families with similar experiences. Financial support for families in need. Promotes good quality care for people with all forms of CJD, and promotes research into CJD.

Address:

  • P.O Box 346
  • Market Daryton
  • Shropshire
  • TF9 4WN

Aims to promote public awareness and research of Crohn's disease and related disorders.

Address:

  • Parkgate House
  • 356 West Barnes Lane
  • Surrey
  • KT3 6NB

National voluntary organisation of and for people whose lives are affected by Epidermolysis Bullosa (EB). Services include advice and assistance from specialist healthcare staff, information, peer group support, advocacy, funding of medical research and campaigning.

Address:

  • 13 Wellington Business Park
  • Dukes Ride
  • Crowthorne
  • RG45 6LS

One of UK's centres for clinical research into dementia. Lead centre for trialling new drugs to slow the progression of Alzheimer's disease (which causes the majority of dementias).

Address:

  • The National Hospital for Neurology
  • 8-11 Queen Square
  • London
  • WC1N 3BG

The Centre aims to explore the practical design implications of key social developments. Works with three design communities: students, new graduates and professionals to promote inclusive design through practical projects, research, events, exhibitions and publications. Produce a range of publications, which are available in printed form or to download.

Address:

  • Helen Hamlyn Research Centre
  • Royal College of Art
  • London
  • SW11 4AN

The organisation is campaigning and researching access and freedom of mobility for people with disability in Scotland.

Address:

  • 2nd Floor Hayweight House
  • 23 Lauriston Street
  • Edinburgh
  • EH3 9DQ

An independent non-political body which funds programmes of research and development in the fields of housing, social care and social policy. Establish partnerships with researchers and innovative practitioners.

Address:

  • The Homestead
  • 40 Water End
  • York
  • YO30 6WP

Aims - to prevent death and disability resulting from meningitis by actively working with families affected by meningitis - to help relieve the distress to individuals and families caused by death and damage due to illness - to raise funds for research into its prevention and treatment and to promote the dissemination of research finding. - to increase public awareness of meningitis and the education of people, and promote a better understanding of the disease amongst health professionals and policy decision makers.

Address:

  • Newminster House
  • 27-29 Baldwin Street
  • BS1 1LT

Funds research into migraine and holds international symposia. Helps to set up specialist migraine clinics. Runs a helpline and provides information and advice on migraine management.

Address:

  • 55-56 Russel Square
  • London
  • WC1B 4HP

Global network of MS organisations with 44 members around the world and links to others.

Address:

  • 3 Floor, Skyline House
  • 200 Union Street
  • London
  • SE1 0LX

Promote awareness and early diagnosis of primary immunodeficiencies. Provide information and support and encourage original research.

Address:

  • Alliance House
  • 12 Caxton Street
  • London
  • SW1H 0QS

Signalong is a sign-supporting system based on British Sign Language. Is designed to help children and adults with communication difficulties, mostly associated with learning disabilities. The Signalong Group has researched and published the widest range of signs in Britain. It also provides publications, training and advice.

Address:

  • Stratford House,
  • Waterside Court
  • Rochester
  • ME2 4NZ

Funds research into the causes and treatment of asthma allergy and related disorders.

Address:

  • Mailpoint 810, Level F
  • Southampton General Hospital
  • Southampton
  • SO16 6YD

Carries out research, teaching and training, and provide advice and resources in the area of visual impairment and education. Open Mon-Fri, 10am-4pm.

Address:

  • School of Education
  • University of Birmingham
  • Birmingham
  • B15 2TT

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