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Useful contacts

This section of DLF Data contains details of numerous voluntary organisations, Government agencies, support groups and other contacts that may be useful to older and disabled people and their carers. If you find any information that is incorrect please email Data Services to let us know which 'Contact' is incorrect and what information needs changing. If you would like to be added to the database please complete these questions.

Browse names alphabetically

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z0-9

Housing association providing accessible homes and support services to disabled and non-disabled people. We have 3300 homes, of which 1300 are built specifically for wheelchair users. We champion inclusion and independence and our ethos is based on the social model of disability.

  • Holyer House
  • 20-21 Red Lion Court
  • London
  • EC4A 3EB

Supports people who have haemochromatosis and advises on testing siblings and children. Promotes awareness of the condition. Publishes a quarterly newsletter.

  • PO Box 6356
  • Rugby
  • CV21 9PA

The Haemophilla Society is a support group for Haemophilia, von Willebrand Disease and other coagulation defect disorders or related bleeding disorders. Offers fellowship, advice, financial help, study, representation and local groups. Aims to secure the best possible care, treatment and support for people with haemophilia and related bleeding disorders and their families.

  • Willcox House
  • 140-148 Borough High Street
  • London
  • SE1 1LB

Aims to be an essential network for people who have lost or are losing their hair. Provides information on medical treatments, meetings and newsletter, guidance on coping, and where to find the most suitable wigs.

  • Lyons Court
  • 1668 High Street
  • Knowle
  • B93 0LY
  • Telephone: 01564 775281

Aims to encourage, promote and teach swimming to disabled people of all ages and all disabilities using a specialist technique known as the Halliwick concept. Aims for enjoyment and safety as well as proficiency.

  • c/o ADKC Centre
  • Whitstable House
  • London
  • W10 6SB

Provide towards the cost of helpers of severely disabled people on holidays where these costs cannot be met by the helper, or from any other source, and where the disabled person would be unable to go on holiday without someone to assist him or her with everyday needs. Applications on the Trust's own forms must be supported by a bona fide organisation, doctor or social worker, willing to verify that the applicant meets the scheme's requirements. Minimum age is 17 years. Assistance towards holidays provided by local authorities will not be considered.

  • Northchapel House
  • North Street
  • Horsham
  • RH12 1RD

Provides advice on adaptations to golf clubs, electric scooters and tee off equipment. Has a supply of equipment for loan to members and/or golf centres. List of clubs accessible to Foundation members can also be supplied.


Voluntary housing association. Provide a range of housing and related services in Scotland. Operates Careline for individuals and organisations with 24 hour support. Advice about personal and buildings security, repairs, care workers support, dispersed alarms, and telecare services.

  • 95 Mc Donald Road
  • Edinburgh
  • EH7 4NS

Specialise in retirement housing for sale or rent.

  • Hanover House
  • 1 Bridge Close
  • Staines
  • TW18 4TB

Headway act as a national liaison body for local groups in order to encourage more effective support and self-help for patients with head injuries and for their relatives with the problems created by these.

  • Bradbury House
  • 190 Bagnall Road
  • Nottingham
  • NG6 8SF

Provide trained dogs to assist profoundly deaf people by alerting them to specific sounds, for example doorbell, telephones, smoke alarms using a paw to "touch" before either leading to the sound or lying down to indicate danger. The dogs also provide companionship, restore confidence and feelings of security.

  • The Grange
  • Wycombe Road
  • Sunderton, Princess Risborough
  • HP27 9NS

LINK's Helpdesk is a vital first-point of contact for anyone who needs advice, information or support when dealing with acquired hearing loss. They are a volunteer-led organisation whose main objectives are to provide advice, information and support, to promote communication acces and to raise public and professional awareness of the issues associated with hearing loss.

  • 27-28 The Waterfront
  • Eastbourne
  • BN23 5UZ

Aims to provide information and support for anyone at high risk of premature coronary heart disease, especially families with familial hypercholesterolemia. Promotes the early detection and preventative counselling of families prone to premature coronary heart disease.

  • 7 North Road
  • Maidenhead
  • SL6 1PE

The Heartline Association provides information, contact and support for families who have children with congenital heart conditions. The main concern is the home environment, education and future employment of children with heart complaints.

  • 32 Little Heath
  • London
  • SE7 8HU

Helps people with dyslexia of all ages to fulfil their potential by optimising their educational opportunities and quality of life. Offers a comprehensive range of services including consultation, assessment, specialised tuition, speech and language therapy, and counselling. Trains teachers in the special skills needed. Helps schools manage people with dyslexia in the classroom. Raises awareness on how people with dyslexia can be helped.

  • Frensham
  • Farnham
  • GU10 3BL

The Centre aims to explore the practical design implications of key social developments. Works with three design communities: students, new graduates and professionals to promote inclusive design through practical projects, research, events, exhibitions and publications. Produce a range of publications, which are available in printed form or to download.

  • Helen Hamlyn Research Centre
  • Royal College of Art
  • London
  • SW11 4AN

Provide respite, short term or long term live-in care with the objective of enabling independence in the comfort of the home. Bespoke support packages including full personal care and companionship from fully trained carers, published CSCI report available.

  • Arrow House
  • 8 Church Street
  • Alcester
  • B49 5AJ

Organisation which supply information and support to people with hemiplegia and their families. Telephone helpline open Mon-Fri, 10am-1pm during school term time. Produce fact sheets, leaflets, newsletter and a video by children for children. Run workshops and organise sports and activities.

  • 6 Market Road
  • London
  • N7 9PW

Provides a range of residential, education, training and community care services for people who are blind and partially sighted of all ages across the north of England in Merseyside, Greater Manchester, North and West Yorkshire and the North East.

  • Atherton House
  • 88-92 Talbot Road
  • Old Trafford
  • M16 0GS

The Herpes Viruses Association supplies information on herpes simplex virus to the media, health professionals and the public. This viral skin condition is known as cold sores (on face), whitlows (on fingers) or 'herpes' on genitals or other skin areas. Individuals affected physically or psychologically can receive counselling and advice via the helpline or by letter.

  • HVA
  • 41 North Road
  • London
  • N7 9DP

Supports people with learning disabilities. Provide a national network of user focused services including; supported living, registered residential care, day opportunities, specialist services for those with specific syndromes or complex support needs, transition workshop, advocacy, short breaks (respite care), research and ICT (information communication technology) training.

  • 5/6 Brook Office Park
  • Folly Brook Road
  • Bristol
  • BS16 7FL

Highland Community Care Forum works with users of Community Care Services and their carers in the Highland to develop the confidence, skills, knowledge and networks through which they can become the central influence on services which affect their lives.

  • Glen Orrin House
  • High Street
  • Dingwall
  • IV15 9TF

Aims to help families with young children who are finding it hard to cope by visiting them regularly in their own home. The volunteer helps the family to cope with the pressure they are facing, reducing the potential for family crisis or breakdown.

  • The Home-Start Centre
  • 8-10 West Walk
  • Leicester
  • LE1 7NA

Principle: A householder (often an older person) offers accommodation to a homesharer (often a student) in exchange for an agreed level of help (cleaning, shopping, accompanying out, etc.). The householder may need help with the household tasks, or some financial support, or a combination of both. Homeshare programmes in the UK are available in London, Bristol, Oxford, East Sussex and Somerset. All programmes are independent of Homeshare International, but details can be found on the HI website.

  • 11 Divinity Road
  • Oxford
  • OX4 1LH

Aims to assist disabled children in developing countries and the UK and is committed to furthering this work through voluntary effort.

  • Hope House
  • 2nd Floor West
  • HP1 1LR

Publish a directory of hospice and palliative care services, home care teams and hospital support teams in the UK and the Republic of Ireland. Information on hospice and palliative care services overseas is also available.

  • Hospice House
  • 34-44 Britannia Street
  • London
  • WCX 9JG

Website that allows health professionals to sell their unwanted and surplus medical equipment and supplies. Fee payable.

  • Dolphin House
  • 36 Liverpool Street
  • Manchester
  • m30 0wa

Housing 21 is a major national provider of housing, care and support services for older people. They started life over 40 years ago and as a registered housing association are a not-for-profit organisation with charitable status. They are committed to improving people's lives and well-being by promoting choice and independence for older people through good quality housing, care and support.

  • Tricorn House
  • 51-53 Hagley Road
  • Birmingham
  • B16 8TP

How To Communications produce the Friendly Guides range. These bright, clear guides are designed to help those with learning disabilities to make informed decisions, carry out day-to-day tasks, live in their own homes and be valued in the workplace. The range is growing all the time.

  • Studio One 7 Clifton Gardens
  • Folkestone
  • CT20 2EB

The Association has regional care advisors throughout the country offering care, advice and information to people with Huntington's Disease, their family and friends.

  • Suite 24 Liverpool Science Park
  • Innovation Centre 1
  • Liverpool
  • L3 5TF

Offer support to families affected by haemolytic Uraemic Syndrome and E.Coli 0157

  • 79 Hayes End Road
  • London
  • UB4 8EJ

To help provide information and ideas for ADHD/Hyperactivity. Our main focus is a dietary and nutritional approach. Free information pack for parents, carers and professionals.

  • 71 Whyke Lane
  • Chichester
  • Chichester
  • PO19 7PD

Patient support group for people who have a hypermobility syndrome, including Ehlers-Danlos Syndromes, offering information, support, local group networks and newsletters to its members.

  • Sovereign House
  • 22 Shelly Road
  • Worthing
  • BN11 1TU
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