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Useful contacts

This section of DLF Data contains details of numerous voluntary organisations, Government agencies, support groups and other contacts that may be useful to older and disabled people and their carers. If you find any information that is incorrect please email Data Services to let us know which 'Contact' is incorrect and what information needs changing. If you would like to be added to the database please complete these questions.

Browse names alphabetically

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z0-9

Provides an extensive range of quick to find resources for the over 50's. Aims to help older people maintain the activities and nostalgic memories of their younger years. Also provide information on areas such as benefits, pension and finance, health, travel offers, leisure, mobility, helpful organisations, articles of interest, nostalgic memories and gifts.

Provide expert care and practical and emotional support for people living with cancer, including families, friends and carers. Raise funds for specialist Macmillan nurses and doctors, build vitally needed treatment centres, provide grants for patients with financial difficulties, offer training and resources to cancer self help and support groups and provide a range of information locally and nationally.

  • Anchor House
  • 89 Albert Embankment
  • London
  • SW1 7UQ

Works with the NHS and others to provide expert nursing and medical care, also emotional and practical support from the point of diagnosis onwards, to people with cancer and their families.

  • Edinburgh
  • EH1 2DP
  • Telephone: 0131 229 3276
  • Fax: 0131 228 6710

The Macular Disease Society is the UK's only specialist chairty for people affected by macular disease which affects central vision. We provide a free helpline, counselling, information and non local peer support groups across the UK.

  • PO Box 1870
  • Andover
  • SP10 9AD

Aims to grant the favourite wish of children with life-threatening illnesses aged between 3-18 years old.

  • 329-331 London Road Camberley
  • Camberley
  • GU15 3HQ

Provide opportunities for established independent management trainers and consultants working with voluntary organisations to meet each other, discuss issues of common professional concern and develop stronger working links. Activities include organising seminars and events, publishing a directory of members, and promoting good practice in voluntary sector training and consultancy.

  • PO Box 63494
  • London
  • SE4 9DA

Aims to offer support to people with Marfan Syndrome and their families, in order to facilitate life-saving diagnosis, and to foster research. Actively encourage worldwide collaboration amongst professionals and lay people, as careful medical and surgical management, together with an appropriate lifestyle, can greatly improve prognosis and lengthen life span.

  • Rochester House
  • 5 Aldershot Road
  • Fleet
  • GU51 3NG

Charity that gives grants to women who are in financial need, and who are in ill health or suffering from a health-related problem. Grants given include those for aids for disability.

  • PO Box 135
  • Buntingford
  • SG11 2XJ

Hands-on nursing care is provided day and night by approximately 6,000 Marie Curie nurses in patients' homes through the Marie Carie Nursing Service. This service is available throughout the UK and accessed through the local district nursing service. There are 11 Marie Curie Centres (Hospices) and admission is via GP or consultant. Both the services are free of charge to cancer patients. Runs training courses on aspects of cancer for all health professionals working in the field.

  • 89 Albert Embankment
  • London
  • SE1 7TP

Charity providing care for children and adults with profound physical and learning disabilities. Supply a home for life, respite care and day care, and are staffed by nurses and carers. Two homes: Martha House for adults, and Frances House for children.

  • Homemead Lane
  • Hacklinge, Deal
  • CT14 0PG

Website offering accessible house exchange system for disabled people, for holiday and general travel use.

Aims to support people with ME/CFS/PVFS, providing information and support on ME related problems, staffed by trained volunteers with personal experience of ME.

  • 7 Apollo Office Court
  • Radclive Road
  • Gawcott
  • MK18 4DF

Designs and makes equipment for children and young people with disabilities when no other solution can be found.

  • Unit 2, Eclipse Estate
  • 30 West Hill
  • Epsom
  • KT19 8JD

Provide equipment for disabled children that cannot be purchased from commercial sources or to adapt existing devices to suit individual needs.

  • Unit 2, Eclipse Estate
  • 30 West Hill
  • Epsom
  • KT19 8JD

Aims to take reasonable steps to protect public health and safeguard users and carers. Ensures that medical and healthcare devices and equipment meet appropriate safety, quality and performance standards and comply with relevant European Directives.

  • 151 Buckingham Palace Road
  • Victoria
  • London
  • SW1W 9SZ

Provides a series of DVD resource packs using archive films to bring past events and experiences to life, prompting stories and memories.

  • Yorkshire Film Archive
  • York St John University
  • York
  • YO31 7EX

Provide advice and support to people with a learning disability, their families and carers through a network of local and divisional offices and groups, and through the support team at head office. Produce a magazine 'Viewpoint' where advertisements for second-hand equipment may be placed.

  • 123 Golden Lane
  • London
  • EC1Y 0RT

Provide information and support to those with Meniere's disease and to their carers. Provide a helpline; information sheets on understanding, treating and living with the condition; a quarterly magazine; a contact list for members to share and understand experiences; and support research.

  • The Rookery
  • Surrey Hills Business Park
  • Dorking
  • RH5 6QT

Offer support and assistance to people with meningitis and their families, raise awareness of meningitis. Can provide grants towards specialist care and equipment. Supports services including counselling, therapy home visits, family days, one-to-tone support and financial support grants are available throughout the UK to people following a direct experience of meningitis. Opening Hours: Monday - Friday, 9am - 5pm; 24 hour helpline 365 days a year.

  • Fern House
  • Bath Road
  • Gloucestershire
  • GL5 3TJ

Leads the fight against meningitis by producing a range of information material; funds research into vaccines and treatment; and offering a wide range of support services, including a 24 hour helpline.

  • Fern House
  • Bath Road
  • Stroud
  • GL5 3TJ

Aims - to prevent death and disability resulting from meningitis by actively working with families affected by meningitis - to help relieve the distress to individuals and families caused by death and damage due to illness - to raise funds for research into its prevention and treatment and to promote the dissemination of research finding. - to increase public awareness of meningitis and the education of people, and promote a better understanding of the disease amongst health professionals and policy decision makers.

  • Newminster House
  • 27-29 Baldwin Street
  • BS1 1LT

The Mental Health Foundation and the Foundation for People with Learning Disabilities are the leading UK charity working to improve services for both people with mental health problems and people with learning disabilities. They are the only charity to fund and work with both service users and providers and play an important role in funding research and new approaches to prevention, treatment and care. The Foundation for People with Learning Disabilities is part of the Mental Health Foundation which is based at the same address. Mental Health Foundation aims to improve the support available for people with mental health problems and people with learning disabilites. To strive to reduce stigma attached to mental health and learning disabilities. Activities: - Providing information for anybody who may be experiencing mental health problems/learning disabilities, or who may want to find out more; allocating grants for research and community projects; contributing to the public debate; educating policy makers and health care professional; publications - research reports, information leaflets and factsheets. Publication lists are available. http://www.learningdisabilities.org.uk/

  • Colechurch House
  • 1 London Bridge Walk
  • London
  • SE1 2SX

Aims to provide a range of accommodation and care services, based on Christian principles, which are open to all older people in need, whatever their beliefs. Services provided include: residential homes; dementia care homes; sheltered housing schemes; live at home volunteer befriending schemes; and the 'Live At Home' initiative.

  • Epworth House
  • Stuart Street
  • Derby
  • DE1 2EQ

Small parent support group currently offering telephone support to families of children with microcephaly. Can be accessed by Contact a Family's Freephone Family Helpline.

  • PO Box 519
  • Pinner
  • HA5 9DR

Funds research into migraine and holds international symposia. Helps to set up specialist migraine clinics. Runs a helpline and provides information and advice on migraine management.

  • 55-56 Russel Square
  • London
  • WC1B 4HP

Provides full-time accommodation for older people. Helps to maintain independence and ability, and provides nursing and cooking services. Offer various activities including art classes, shows and knitting.

  • Millford Mill Road
  • Salisbury
  • SP1 1NJ

MK CIL Disability Information Service is a centrally located charity giving confidential, free and independent information to disabled people, their families, carers and associated professionals. The wide range of subjects covered enables people with disabilities to make informed choices and enhance and maintain independence. MK CIL holds the Community Legal Service Quality Mark for information provision. CIL has a database of both local and national support groups, a working stairlift and a vast database of disabililty equipment - to source any clients needs. The Centre has a kitchen, bathroom and other demonstration equipment for people to come in and try out. In addition, a dlf database is held and can be used to source any equipment requirements. The Citizens Advice Bureau (CAB) hold weekly appointments at CIL and can offer advice on Benefits; Debt; Consumer Issues; Housing; Family Law; Immigration and Employment Issues. CIL staff are able to help with the filling in of DLA and AA claims packs. The Centre is level throughout with automatic doors at the entrance. There are adapted toilets and there are also meeting rooms available for hire. CIL is open each weekday from 10.00am to 4.00pm. Blue Badge parking is sited at the front of the building. CIL is located within the Church of Christ the Cornerstone opposite Marks & Spencer in Central Milton Keynes.

  • 330 Saxon Gate West
  • Milton Keynes
  • MK9 2ES

Charity works for people experiencing mental distress. Campaigns for their right to lead an active and valued life in the community, drawing on the knowledge and skills both of people who provide and use mental health services. Run local groups with services such as supported housing, crisis helplines, drop-in centres, counselling, befriending, advocacy, employment and training schemes around the country. Produce a range of publications including a bi-monthly magazine 'OpenMind'. Helpline open, Mon-Fri 9.15am-5.15pm.

  • 15-19 Broadway
  • London
  • E15 4BQ

Provide support, help and information for all those affected by the distress of losing a baby in pregnancy.

  • 17 Wentworth Terrace
  • Wakefield
  • WF1 3QW

Public enquiry service to advise people with disabilities, their carers and employers, how best to retain or enhance their mobility and independence for example, by adapted transport where necessary. Offers specialist information service to staff in public and voluntary organisations. Advice available on general questions concerning disability.

  • Unit 7 Rotton Park Street
  • B16 0AB

Specialist advice on adapted vehicles, powered mobility equipment, driving lessons. Accredited mobility and assessment centre. Member of Forum of Mobility Centres.

  • Portside Business Park
  • 189 Airport Road West
  • Belfast
  • BT3 9ED

Specialist advice on adapted vehicles, powered mobility equipment, driving lessons. Specialist driving tuition available. Advice on car adaptations, positioning of controls, vehicle insurance, and assessments for both drivers and passengers. Motability accredited. Member of Forum of Mobility Centres.

  • St Mary's Hospital
  • Green Hill Road
  • Armley
  • LS12 3QE

Specialist advice on adapted vehicles, powered mobility equipment, driving lessons. Adapted cars available for test drives, driving lessons available in adapted cars also. Member of the Forum of Mobility Centres. open 9am - 5pm Monday - Friday

  • Cornwall Mobility Centre
  • North Buildings
  • Truro, Cornwall
  • TR1 3LQ

Website that allows people to sell their unwanted and surplus mobility equipment. Fee payable.

  • Dolphin House
  • 36 Liverpool Road
  • Eccles
  • M30 0WA

Provides powered wheelchairs and scooters to severely disabled children and adults who cannot obtain them through any of the statutory sources or purchase such equipment themselves. Aims to help disabled people whose disability falls outside the remit of major disability charities. We do not give grants.

  • 17b Reading Road
  • Pangbourne
  • Reading
  • RG8 7LR

Educational resource with information on wheelchairs, scooters, wheelchair sports, disabled travel, and other mobility aids to enhance the lives of individuals of all ages who need mobility assistance.

A number of services such as a range of day options, Information and Advice Service, Supported Living, Care Agency, Self Directed Support Services in Leicester City, Leicestershire, Rutland, Wandsworth and Nottingham (City). In addition they provide Counselling, Social Groups, Meet and Eat (new service). They also have a narrow boat for use for day trips and breaks.

  • 2 Oak Spinney Park
  • Ratby Lane
  • Leicester
  • LE3 3AW

The Motability Scheme enables disabled people to use their government-funded mobility allowance to lease a new car, scooter or powered wheelchair. The scheme is available to those who receive the enhanced rate of the mobility component of Personal Independence Payment or the enhanced rate of the mobility component of Armed Forces Independence Payment, or those in receipt of the higher rate mobility component of DLA and WPMS.

  • Warwick House
  • Roydon Road
  • Harlow
  • CM19 5PX

Work globally along side people with mobility disabilities, their families and communities. They design sports wheelchairs which they use in their own projects and also sell to other non-government organisations and trained wheelchair services.

  • Unit 2 Sheene Road
  • Bedminster
  • BS3 4EG

Aims to ensure that people affected by MND can secure the care and support they need. To support those affected by Motor Neurone Disease, their families and carers.

  • PO Box 246
  • Northampton
  • NN1 2PR

Organisation of professional mouth and foot painting artists. Scholarship scheme is available to help artists reach the standard for acceptance to MFPA. Reproduced paintings in the form of cards and calendars are sold.

  • 9 Inverness Place
  • London
  • W2 3JG

Funds medical research into finding the causes of multiple sclerosis and a cure. Provides a welfare service for people with multiple sclerosis and their families

  • Ratho Park
  • 88 Glasgow Road
  • Newbridge
  • EH28 8PP

Supports people with MS, their families and friends, and the health and social care professionals who work with them. Provide information and education for health professionals and support applied research. Aims to make sure that everyone diagnosed with MS should have access to a specialist nurse.

  • Spirella Building
  • Bridge Road
  • Letchworth Garden City
  • SG6 4ET

Global network of MS organisations with 44 members around the world and links to others.

  • 3 Floor, Skyline House
  • 200 Union Street
  • London
  • SE1 0LX

The Centre support anyone affected by Multiple Sclerosis, including family, friends, carers and professionals in the field.

  • 7 Peartree Business Centre
  • Peartree Road
  • Stanway, Colchester, Essex
  • CO3 0JN

Provides information, funds research and campaigns for people affected by MS. Helpline open Mon-Fri, 9am-9pm.

  • MS National Centre
  • 372 Edgware Road
  • London
  • NW2 6ND

Includes discussion forums for both parents with disabilities themselves and parents of children and young people with disabilities.

  • Studio 6
  • Deane House Studios
  • NW5 1LB

Aims: 1 to search for treatments and cures for neuromuscular conditions, 2 to provide practical, medical and emotional support for people affected by the conditions. 3 To fund research into the causes of neuromuscular conditions and effective ways of treating them. Funds research into treatment and cures for MD and allied neuromuscular conditions. Supports those affected by the condition with counselling, grants and information. Produces a quarterly magazine 'Target MD' where advertisements for second hand equipment may be placed.

  • 61 Southwark Street
  • London
  • SE1 0BU

Aims to help people who are deaf or hard of hearing to explore the world of music and develop their own musical skills. Organises classes, workshops, lectures and recitals, gives advice and provides information.

  • The 1855 Building
  • Discovery Road
  • Halifax
  • HX1 2NE

Offer support and information to people with myasthenia and their families. Aims to increase public awareness also medical and raising funds for research in order to find a cure.

  • The College Business Centre
  • Uttoxeter New Road
  • Derby
  • DN22 3WZ

Informs and supports people affected by myeloma, and helps improve treatment and standards of care through research and education. Services include provision of information packs and factsheets, educational patient/family seminars, a quarterly newsletter, several patient support groups, and a telephone helpline which offers information, practical advice and support.

  • 22 Logie Mill
  • Beaverbank Business Park
  • Edinburgh
  • EH7 4HG

Aims to support those with dermatomyositis, polymositis and inclusion body myositis and their families, by providing information and practical help. Aims to increase the understanding of medical professional. Raises fund to support research. Provides specialist equipment to hospitals and occasionally to individuals.

  • 146 Newtown Road
  • Woolston
  • Southampton
  • SO19 9HR
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