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Useful contacts

This section of DLF Data contains details of numerous voluntary organisations, Government agencies, support groups and other contacts that may be useful to older and disabled people and their carers. If you find any information that is incorrect please email Data Services to let us know which 'Contact' is incorrect and what information needs changing. If you would like to be added to the database please complete these questions.

Browse names alphabetically

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z0-9

The SAD association is a voluntary organisation and registered charity which informs the public and health professionals about SAD and supports and advises sufferers of the illness. It produces a newsletter three times a year and other publications, holds meetings, has a network of contacts and raises money for research into SAD. In order to continue its work and provide sufferers with information and support, SADA is obliged to charge for the information pack and membership.

  • PO Box 989
  • Steyning
  • BN44 3HG

To create and deliver artworks to people with disabilities by training, and art works with people through movement.

  • 52 Albert Rd
  • Nottingham
  • NG2 5GS

Aims to trace adult members of families with whom contact has been lost, for the purpose of reconciliation. Adoption enquiries are not included, nor searching for friends. Correspondence by mail only.

  • 101 Newington Causeway
  • London
  • SE1 6BN

Aims to help the suicidal and despairing people in London and in large part of the UK. Minicom numbers: 01204 531122 based in Bolton 0208 780 2521 based in Putney (National number for text telephone) E-Mail numbers: jo@samaritans.org - for callers who are happy for their names to be known samaritans@anon.twwells.com - for callers who wish to remain anonymous

  • The Upper Mill
  • Kingston Road
  • Ewell
  • KT17 2AF

SANE is a national mental health charity whose aims are to raise awareness of mental illness and campaign to improve services and initiate and fund research into the causes of serious mental illness through its research centre. Information and emotional support is also provided to anyone affected by mental illness via the helpline and email service. Helpline open Mon - Sun 6 pm - 11 pm.

  • 1st Floor
  • Cityside House
  • London
  • E1 1EE

Aims to work together with children to create a better future for children. In the UK, Save the Children combines practical work on the ground, often in partnership with other agencies, with research and campaigning activities to tackle the needs of children.

  • 1 St John's Lane
  • EC1M 4AR

The society provides quarterly newsletters, information leaflets and holds group meetings for those with Scleroderma.

  • Bride House
  • 18-20 Bride Lane
  • London
  • EC4Y 8EE

Aims to put people with scoliosis and parents of children with scoliosis in touch with each other, and inform the public of the importance of early detection. Produces a newsletter twice a year. Information and advice about clothing can also be provided.

  • 4 Ivebury Court
  • 325 Latimer Road
  • London
  • W10 6RA

Aims that all disabled people achieve equality. Scope's work is focussed on four main areas early Years; employment; education and Daily Living. In addition to a range of national and local services, Scope has over 250 affiliated local groups. Helpline is open from Mon-Fri 9am-9pm, Sat-Sun 2pm-6pm. Information and advice is provided on all aspects of cerebral palsy and disability issues as well as information about and referral to Scope services as appropriate. A team of trained Counsellors provides clients with emotional support and initial counselling.

  • 6 Market Road
  • London
  • N7 9PW

Equipment demonstration centre with a range of equipment available on loan if you have been assessed by a trained professional as needing them. Includes bathing, toileting, bed and chair equipment.

  • Block 12 Tweedbank Industrial Estate
  • Galashiels
  • TD1 3RS

Develop, support and encourage sporting opportunities for people with disabilities. Organise sports events for those with a physically, sensory or learning disability. Offers a training programme, which provides participants with an opportunity to examine issues associated with sports for people with a disability. Range of publications available to promote its programme of activities and provide information relating to disability sport issues.

  • Caledonia House
  • Edingurgh
  • EH12 9DQ

Charity established by families living with Huntingtons disease. Set up specialist family support services and a network of specialist services.

  • St James Business Centre
  • Linwood Road
  • Paisley
  • PA3 3AT

Works to ensure that people with MND secure the care and support they need. Activities include a network of MND clinical specialists throughout Scotland; specialist equipment loan service; library and information service; study days for health and social care professionals. Provide grants to individuals in need. Produce a quarterly newsletter 'AWARE, and a range of publications.

  • 76 Firhill Road
  • Glasgow
  • G20 7BA

The Scottish Sensory Centre (SSC) is a national centre which promotes innovation and good practice in the education of deaf, visually impaired and deafblind pupils and young people in Scotland. It aims to provide specialist knowledge, advice and guidance by working collaborativelly with professionals, parents and voluntary agencies involved in the education of children with a sensory impairment. The SSC reaches its overall aims by an annual programme of CPD training; disseminated best practice via the SSC website and ensuring that SSC resource lending library has a comprehensive collection of materials and resources.

  • Moray House
  • Institute of Education
  • Edinburgh
  • EH8 8AQ

The Trust has 12 caravans and 1 chalet providing low cost self-catering holidays on 11 fully commercial holiday parks (eg Haven, Hoburne) for any family or group with special needs or low income and one parent families - in fact any family or group in which the quality of life is diminished by disability, infirmity or misfortune. No Scouting or Guiding connection is required.

  • Gilwell Park
  • Bury Road
  • London
  • E4 7QW

Aims to raise awareness regarding diving and disability and to enable people to participate in scuba diving and snorkelling. Activities include: liaising with international diver training agencies and organisations concerned with disability issues; providing specialist and adapted diving equipment; seeking grants and funding to subsidise the extra costs incurred by people with a disability training as recreational scuba divers.

  • 18 Crowhurst Mead
  • Goldstone
  • TN29 9YG

Registered charity providing accommodation and employment solutions for people with learning difficulties.

  • 13 & 14 Nursery Court
  • Kibworth Business Park
  • LE8 0EX

Provides services, advice, support and information for deafblind people of all ages, their families and professionals in the field. Families are supported through a national network of parent's self-help groups. Runs holidays for deafblind children and adults, offers respite care, further education and rehabilitation services. Long term residential care is available in group homes for deafblind individuals throughout the UK. Works and campaigns with local authorities and other voluntary organisations to develop services for deafblind people, and to raise awareness. Produces a quarterly magazine.

  • 101 Pentoville Road
  • London
  • N1 9LG

Aims to enable people with sensory and other disabilities to gain full access to, and enjoy, the natural world. Produce a range of publications.

  • Watering Lane Nursery
  • Pentewan
  • St Austell
  • PL26 6BE

Provide support and information to people with issues around sexual problems, and their partners. Inform and educate the general public and health professionals of the causes and treatments available for sexual problems. The Association also addresses the problem of female sexual dysfunction.

  • Suite 301 Emblem House
  • London Bridge Hospital
  • London
  • SE1 2PR

A safe self-help and peer support social club for people with social and physical disabilities who wish to enjoy life and find a partner. We run the Sex & Disability Helpline (11 am - 7 pm weekdays) and SHADA, the Sexual Health & Disability Alliance.

  • BCM Box Lovely
  • London
  • WC1N 3XX

The UK's leading disability arts organisation, which aims to improve access to the arts for deaf and disabled people whilst supporting deaf and disabled artists to challenge perceptions and promote Deaf and Disability Culture.

  • Deane House Studios
  • 27 Greenwood Place
  • London
  • NW5 1LB

Charity that helps people facing disadvantage into work, gain skills and take control of their futures.

  • Third Floor
  • 10 Victoria Street
  • Bristol
  • BS1 6BN

Shaw Trust Accessibility Services carry our audits to assess the level of accessibility and provide solutions. This includes everything from buildings and facilities to websites and mobile apps.

  • The Disability Action Centre
  • The Courtyard
  • Neath
  • SA10 6EJ

Provides free, confidential advice to people with housing problems through online housing information and face to face local services.

  • 88 Old Street
  • London
  • EC1V 9HU

Provides advice, information and support to people with spina bifida and/or hydrocephalus, their family and carers. Promotes individual choice, control and quality of life. A team of workers cover most of England, Wales and Northern Ireland and are backed up by specialist advisors in education, mobility, continence and medical matters. Produces a range of publications including leaflets, booklets, magazines and newsletters.

  • 42 Park Road
  • Peterborough
  • PE1 2UQ

Provide information on shingles and especially post-herpetic neuralgia which can follow shingles.

  • 41 North Road
  • London
  • N7 9DP

Aims to support family based short break services in England, Wales and Northern Ireland. These services link disabled children to support families/carers who offer periods of care. Shared Care Network provides an information service, lobbies to promote appropriate services, produces good practice guides to raise standards of care, and organises training conferences. Membership varies according to size of scheme. Publications include Shared Care Network Directory of care providers, Quarterly newsletter, various other publications.

  • Melbourne House
  • 36 Chamberlain Street
  • Wells
  • BS5 0HE

Independent Living Partnership Ltd (ILP) is committed to improving the lives of people by helping them to help themselves. The centre has qualified Occupational Therapists, Moving and Handling Advisors and Trusted Assessors. Visitors can view a wide range of equipment solutions in the demonstration "house", they have the opportunity to choose from the free range (eligibility withstanding), or from a much wider range of "alternative" options. For consultations you will need an appointment (you can telephone or drop in to make one).

  • The Lantern
  • Meadow Farm Drive
  • Shrewsbury
  • SY1 4NG

Provide information, counselling and advice and support to sickle cell sufferers and their families, as well as working to raise the level of awareness about the disorder.

  • 54 Station Road
  • London
  • NW10 4UA

Booking service for interpreters. Provides advice and information about Sign Language Interpretation and communication equipment.

  • BSL Beam
  • 23 Brightling Road
  • London
  • SE4 1SQ

Signalong is a sign-supporting system based on British Sign Language. Is designed to help children and adults with communication difficulties, mostly associated with learning disabilities. The Signalong Group has researched and published the widest range of signs in Britain. It also provides publications, training and advice.

  • Stratford House,
  • Waterside Court
  • Rochester
  • ME2 4NZ

Signature promotes excellence in communication with deaf and deafblind people. We encourage greater understanding of deaf and deafblind people and how they communicate; offer accredited qualifications in relevant subjects like British Sign Language, which you can study at more than 700 locations across the UK; and administer the National Registers for Communication Professionals working with Deaf and Deafblind people.

  • Mersey House
  • Mandale Business Park
  • Durham
  • DH1 1TN

Works with and for homeless people in London. Community based approach focuses on people's emotional needs for companionship. Employ no staff and voluntary workers live in the same conditions as nightshelter guests and residents in their houses. Serve the most vulnerable long-term homeless people. Have an outreach team that brings people into the night shelter (disabled access) which houses up to 15 guests. Also have two other houses in London for longer term residents and a house in Kent. Simon Community take no referrals relying solely on their outreach team to bring guests in.

  • St.Joseph's House
  • 129 Malden Road
  • London
  • NW5 4HS

Supports the health and wellbeing of older people using participatory musical activities, including singing. Coordinates Silver Song Clubs, which provide regular sessions of social and community music making.

  • Unit 19 Folkestone Enterprise Centre
  • Shearway Business Park
  • Folkestone
  • CT19 4RH

Aims to overcome the stigma and shame and to improve upon the current public perception of, and reaction to, skin diseases and disfigurement. Activities include UK wide network of support groups and telephone helpline.

  • Plascow Cottage
  • Kirkgunzeon
  • Dumfries
  • DG2 8JT

Advice on practical matters relating to sleep apnoea. Does not provide medical advice.

  • Po Box 60
  • Chinnor
  • OX39 4XE

Helps parents to help their own children who suffer with cerebral palsy and other forms of motor and sensory impairment. Works with parents who have children aged from birth to five years, on all areas of their development, using principles of conductive education.

  • 166 Roehampton Lane
  • London
  • SW15 4HR

Provide grants for students with physical disabilities in further, higher education and training studying at college/university within the UK. Grants can be up to 2,000 p.a. (2,500 in exceptional circumstances) towards disability related costs of study ie computer equipment, note taker/communicator costs, wheelchairs, travel etc.

  • Unit 18
  • Oakhurst Business Park
  • Southwater
  • RH13 9RT

Provides information to help people understand dementia. Range of resources available include written information, films, activities, e-learning.

  • 206 Marylebone Road
  • NW1 6AQ

Social Care TV shows the work and lives of people involved in social care through films on current issues.

  • 206 Marylebone Road
  • NW1 6AQ

Act as a support to parents whose children are suffering from these disorders to bring about a greater public awareness of Mucopolysaccaride diseases, and to raise fund for research into their treatment.

  • MPS House
  • Repton Place
  • Amersham
  • HP6 9LP

Promotes and disseminates information regarding good foot health and quality shoe fitting. Trains the shoe industry and health professionals in the art of shoe fitting. Can supply foot health information and register of members.

  • c/o The Anchorage
  • 28 Admirals Walk
  • Hingham
  • NR9 4JL

National support group for families with children with trisomy 13 (Patau's Syndrome) and 18 (Edwards Syndrome), and related chromosome disorders. Provide information and advice on the syndromes and can link families together for mutual support.

  • 48 Froggatts Ride
  • Walmley
  • Sutton Coldfield
  • B76 2TQ

Provide a welfare and advisory service for the families of service and ex-service men and women; to help them to obtain all benefits from statutory services to which they may be entitled and also from Service and regimental funds; to help with temporary gratns those who are in distress; to represent the cause of these families to the appropriate government department.

  • 4 St Dunstan's Hill
  • London
  • EC3R 8AD

To promote respect for the dignity of those in our society who suffer from disabilities of mind or body, both young and old, by providing care and accomodation according to Catholic Christian principles and using all means and methods in harmony with these principles.

  • 13 Lower Teddington Road
  • Hampton Wick
  • Kingston Upon Thames
  • KT1 4EU

Offer impartial advice about equipment and practical aspects of daily living for disabled people, carers and professionals. Open Mon-Thurs 9-4.30pm.

  • Bentley Resource Centre
  • High Street Bentley
  • Doncaster
  • DN5 0AA

Information Service website directory aimed at professionals working with children, young people, their families and carers in the Southwark area of London.

Provide support, advice and literature for people with Aphasia and their families. Educate the general public about Aphasia and support those who wish to set up groups for people with Aphasia and their families. Campaigns for better services for people with Aphasia and thier carers. Run a training programme for professionals and carers. Produces various publications DVDs and newsletters.

  • 240 City Road
  • London
  • EC1V 2PR

Organisation providing advice and materials on the special educational needs of children. Aimed at teachers, parents and others who work with children in England, providing publications and regular updates, as well as background information, and what steps to take if a child has special educational needs.

  • Sanctuary Buildings
  • Great Smith Street
  • London
  • SW1P 3BT
  • Telephone: 0870 000 2288
  • Fax: 01928 794248

Aims to provide a 'one stop service' for all information and Communication Technology (ICT) needs Gives independent advice; assessment and training. Organises seminars/conferences for organisations with which they can arrange guest speakers to cover a whole spectrum of additional needs subjects. Publish and information pack and catalogue.

  • Box 42
  • St Helens
  • WA10 3BR

Special needs Kids is an Information Directory and shopping site to help parents and carers of children with special needs. Information on products and services for special needs kids, events and campaigns, disability issues, support groups, respite care, clothing, equipment, toys, leisure activities and days out, holidays, where to go for help and advice, and much more.

Provide year round sports training and events for people with a learning disability. There are 150 local groups throughout England, Scotland and Wales providing regular training in some or all of the following sports disciplines: summer sports; aquatics; athletics; basketball; bowls; cycling; equestrian; football; gymnastic; roller skating; softball; tennis; tenpin bowling; volleyball Winter Sports: alpine skiing; cross country skiing; figures skating; floor hockey; speed skating. Demonstration Sports: badminton; golf; powerlifting; table tennis; team handball; sailing.

  • Corinthian House, 1st Floor
  • 6-8 Great Eastern Street
  • London
  • EC2A 3NT

Aims to enable anyone, whatever their physical disability, to enjoy video games and leisure technology to encourage rehabilitation, self-esteem and inclusion.

  • The Stable Block
  • Cornbury Park
  • Charlbury
  • OX7 3EH

The Spinal Injuries Association enable people with spinal injuries to control their lives and achieve their goals. Represent the interests of all spinal cord injured people, regardless of how the impairment occurred. Support all those affected by spinal cord injury, including the friends and family of the disabled person. Provide an up to date, accurate and comprehensive information service covering a wide range of issues to do with spinal cord injury. Provide a Link Scheme to put spinal cord injured individuals wishing to discuss particular issues in touch with other SCI registered members of the scheme. Provide a list of solicitors, specialising in personal injury claims, who will provide an initial interview free of charge.

  • SIA House
  • 2 Trueman Place
  • Milton Keynes
  • MK6 2HH

Umbrella organisation for the national governing and representative bodies of sport and recreation in the UK. Promotes, protects and develops the interests of sport and physical recreation. Provides advice to policy making organisations whose decisions impact sport and recreation. Ensures that members are kept informed of changes in Government policy and UK and EU law.

  • Burwood House
  • 14 Caxton St
  • London
  • SW1H 0QT

Sportability uses sport and challenging pursuits for people with paralysis. Events in Dorset + Hants, Bristol + Glos, East Midlands, Westmidlands, Kent + East Sussex, Surrey, Oxford and Hampshire. Offer sailing, gliding, Landyachting, Clay pigeon shooting, Quad-Biking, Archery and many more activities.

  • Laynes House
  • 526-528 Watford Way
  • London
  • NW7 4RS

Heart 'n Soul is an arts organisation led by artists with learning disabilities, who manage the Squidz Club for young people with disabilities.

  • Heart 'n' Soul
  • The Albany
  • London
  • SE8 4AG

National charity which aims to help serving and ex-servicemen, women and their families in need. Help with financial, housing, illness, disability, loneliness and other related matters.

  • 4 St Dunstan's Hill
  • London
  • EC3R 8AD

St Christopher's is the largest hospice in the UK. It cares for over 1,500 people each year. It also teaches and trains doctors, nurses and other professionals from all over the UK and from across the world.

  • 51-59 Lawrie Park Road
  • London
  • SE26 6DZ

St John Ambulance is a charitable organisation with its members committed to teaching, providing First Aid and caring for people.

  • 27 St John's Lane
  • London
  • EC1M 4BU

Provide captions for people with a hearing loss who wish to enjoy theatre performance. Offer scripted captioning for theatre productions in the same way that sub-titles are made available for many television programmes. Offer real-time captioning using the same equipment meetings and workshops.

  • First Floor
  • 54 Commercial Street
  • London
  • E1 6LT

Starlight Children's Foundation UK is a registered charity which aims to brighten the lives of seriously and terminally ill children between the ages of 4 and 18 by granting their wishes and entertaining them when they are in hospital. The 'wishes' fall into four main categories: travel wishes, experience wishes, tangible items and celebrity wishes. In addition to the wishes, Starlight works in hospitals by organising parties,outing, and providing Starlight Fun Centres which are mobile entertainment nits incorporating a TV, video unit and Nintendo Game Cube. The above website includes details of the organisation, fundraising and events as well as its services for children.

  • Macmillan House
  • Paddington Station
  • London
  • W2 1HD

StartHere is a simple-to-use information service that makes it easier for people to find the help they need on a range of health, housing, education, employment and social issues. It is available on licence to Local Authorities, GPs, voluntary sector organisations, libraries and other organisations seeking to help people find information.

  • 26a Ganton Street
  • London
  • W1F 7QZ

Range of services including assessments in Hertfordshire or at peoples homes for vehicle controls and adaptations.

  • Unit 5
  • Eastman Way
  • Hemel Hempstead
  • HP2 7HF

STEPS is a national charity providing support, information and practical help for children and adults affected by clubfoot, hip dysplasia and other lower limb deficiencies. We have an online discussion forum on our website and we offer a family contact service where we can put individuals/families in contact with other individuals/families on our records who are in a similar situation.

  • Wright House
  • Crouchley Lane
  • Lymm
  • WA13 0AS

Aims to raise awareness of Stickler Syndrome amongst medical professionals and the general public.

  • Po Box 3351
  • Littlehampton
  • BN16 9GB

Provides support to parents whose baby is stillborn or who have lost a baby before, during or soon after birth.

  • 28 Portland Place
  • London
  • W1B 1LY

The Stroke Association: UK wide charity dealing with stroke in people of all ages. A professional can apply for a one-off Life after stroke grant of up to 200 pounds. The Association's Stroke Information Service provides timely and personalised information. The service is delivered through a dedicated Helpline, including a multilingual service, e-mails and letters. Free quaterly magazine Stroke News, six core leaflets, 40 factsheets and resource sheets covering the many aspects of stroke. All information can downloaded free www.stroke.org.uk. Also provides Communication Support - a rehabilitation service for people whose speech has been affected after stroke; as well as a Family & Carers Support service to help to prepare families for the challenge of life after a stroke. We also encourage the formation of stroke clubs (currently around 500).

  • Stroke House
  • 240 City Road
  • London
  • EC1Y 2PR

Aims to provide supportive nursing and social care for those requiring hospice care or neurological care. Activities include providing medical care and equipment, social services and casework. Providing 18 care centres in the UK, each one specialising in the care most needed by its local community. The people they care for include those with neurological conditions such as Parkinson's Disease, Huntington's Disease, Motor Neurone Disease, Multiple Sclerosis and brain injuries, as well as hospice care. They also have care centres providing mental health care and care of elderly people. Domiciliary work and bereavement counselling are also undertaken from some of the homes. Produce a lot of publications.

  • First Floor
  • 16 Upper Woburn Place
  • London
  • WC1H 0AF

Support dogs assist and support their disabled owners wtih their specific disability, by raising the alarm, picking up dropped items, operating buttons and switches, retrieving specific objects or any other task which may help the disabled person lead a fuller and more independent life. Each dog is trained for the individual needs of its owner, and both dog and owner work together as a team throughout the training. Support dogs also train dogs to help people with epilepsy.

  • 21 Jessops Riverside
  • Brightside Lane
  • Sheffield
  • S9 2RX

Organises local support groups and information for parents whose children have special educational needs.

  • 3rd Floor
  • Royal Oak House
  • Bristol
  • BS1 4GB

Work with blind and partially sighted people and provide services to enable more independent lives, including information, support and advice, professional assessment of needs and a resource centre.

  • Rentwood
  • School Lane
  • Leatherhead
  • KT22 9JX

Works to reduce the impact and incidence of violence and aggression in society, by providing personal safety training and resources to help people minimise risks and avoid potential conflict. The trust is keen to expand its work with vulnerable groups such as a children, young people and the elderly.

  • National Centre for Personal Safety
  • 218 Strand
  • London
  • WC2R 1AT
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